Showing posts with label #CorinneRuiz. Show all posts
Showing posts with label #CorinneRuiz. Show all posts

Saturday, December 12, 2015

Another One Has Departed Too Soon

This is Michael Namey, being remembered at his college.  His intelligent gaze even reminds me of Daniel's.


                   Michael Namey was an 18 year old Florida college student studying software engineering at the University of Central Florida.  Michael collapsed in a classroom at his college in September.   He did receive competent emergency care from a trained individual who said that there was no response.  This first responder has also penned a letter requesting more AEDs at the school. Michael was transported and then transferred to another hospital.  Following some time in ICU, he passed.   Michael was not known to have had any medical pre-existing conditions.  His girlfriend did say that he felt as if he was coming down with a cold the night before.   As is often the case with sudden arrhythmic deaths, it has taken some time for all of the autopsy data to be in.   Medical examiners believe that Michael died from a sudden arrhythmia which likely occurred in his case because his heart was silently enlarged. The normal range for someone his size/weight would have been 450 gms in the upper range of normal, and his was indeed 450 gms.   Sometimes relative cardiac enlargement is due to a virus or  there may be other reasons.   Additionally, he experienced a low blood potassium which is also associated with arrhythmias.

                I cannot help but think of our Daniel.  Daniel would be 19 now.  Michael Namey was said to have been very intelligent and a leader.  He and Daniel may have been friends had they known each other.

               We must improve our ways of detecting those at risk for sudden arrhythmic death . Such deaths are far more common than is realized.

               We send our condolences to Michael's brother Joseph and to the rest of his family.

I also send thanks to Corinne Ruiz who never misses noticing each and every sudden arrhythmic death, particularly those in children and teens.   Corinne lost her lovely daughter Olivia to a sudden arrhythmia.
 Without Corinne's continued work on improving awareness of sudden death issues, I would not know of as many as I do.


Michael Alexander Namey






Additional info on Michael Namey's passing:

 http://www.centralfloridafuture.com/story/news/2015/09/23/ucf-student-who-collapsed-hpa1-classroom-dies/72663216/


Read more about Corinne Ruiz, her daughter Olivia, and Olivia's Heart Project at:

  http://www.oliviasheartproject.org        





Saturday, April 5, 2014

Olivia's Heart Project

               




  I first saw a picture of Olivia Hoff on a webpage which memorialized the sons and daughters, sisters and brothers who passed  due to QT syndromes, a sudden and unexpected heart rhythm disturbance, often in an otherwise healthy person, which all too often produces a sudden death.   Olivia was only fourteen years old at her passing in 2004.

    Daniel joined Olivia on that same memorial page in 2008.   As I looked at each of the pictures of these people, I felt sorrow.  I knew only too well that the departure of each of them will leave a permanent hole in their families, an awful lot like a sudden sink hole.  Regardless of the faith of these families, the loss from their families lives on Earth will be palpable and permanent.

     I was fortunate however to have contact this year with Olivia's mother,  Corinne Ruiz.   Corinne has worked hard to create a living and working memorial to Olivia which may well help to prevent some of the additional losses of children, teens and adults to undiagnosed heart rhythm disturbances.

    This is the story of what happened to Olivia, in her mother's words.

     Corinne Ruiz founded Olivia's Heart Project, which exists to raise awareness of the 400,000 deaths each year from a sudden cardiac death.  10,000 of these annual deaths are children.   Corinne works hard to educate the public, be an advocate for learning CPR, and also to place AEDs (automated emergency defibrillators) in as many public places as possible.  She is also a co-organizer of heart screenings in her community and beyond.   An arrhythmic death is not a heart attack. It is a disturbance in the rhythm of the heart which may be due to malformation, an undiagnosed physical condition, or sometimes only an episodic or hard to catch alteration in an EKG.


      Olivia's Heart Project


        I have tried to bring awareness of this issue following Daniel's passing.   I think that Olivia's mom, Corinne has done an incredible job in terms of bringing awareness of this issue and of bringing AEDs starting in her own community,and reaching beyond.    I know that Olivia would be so proud of her, just as I am sure Olivia's brother is also.


Olivia's Heart Project Newsletter for April, 2014---  Good information here