Monday, February 8, 2016

The Short and Important Life of Nicole Trott

          
Nicole is on the left and is pictured with one of her many dear friends.

 

          Nicole Marie Trott, like Daniel, was one of four children.  She was a high academic achiever and hoped to become a veterinarian. When she wasn't excelling in academics and in sports, she was helping to care for animals in a shelter.  She had been a recent high school graduate and planned to start pre-veterinary studies at Rutgers University in her home state of New Jersey.   Most importantly, she was a kind and loving person who brought joy to everyone who knew her.

              At 18, she attended a party and experienced a collapse and sudden cardiac arrest.  She died in the hospital in which I was trained, which is the Robert Wood Johnson University Hospital.  Upon autopsy, it was learned that a beautiful symptomless girl had a cardiac anomaly called ALCAPA


http://emedicine.medscape.com/article/893290-overview

          



                Nicole's family has started a foundation that gathers funds for the purpose of cardiac testing for high school athletes.   So many children and teens are collapsing and dying from sudden arrhythmic deaths of a variety of causes.  In Nicole's case, a causation was found, while in our son Daniel's case, no structural cause for his sudden arrhythmic death was ever found on multiple autopsy.

              Please consider donating to:

 http://www.nicolesheart.com/




This is a poem that was written by Nicole:



Love...

by Nicole Marie Trott
No definition could ever convey
What such a small word has to say
Movies, songs, poems, and books
Give love many faces and many looks
It cannot be described by words alone
But with a look, or by a lover, shown
Distance can be, to lovers, a vice
So until we're together, these words must suffice
Although we're apart, it's only physically
For when I close my eyes you are here with me
I can smell you scent lingering in the air
And taste your sweet lips as if you're right there
I hear your voice, and it sounds so near
And I can feel your breath whispering in my ear
A glance at your face and in your eyes I hear
All the reasons you love me and hold me near
I hear in the silence what your lips don't say
So I know you love me more each day
You hear me say it and know it's true
But I'll say it again, "I love you"





Waking From a Nightmare

                  
This is not Daniel. So far as I know, he never tried a cigarette or a lite beer. Someone sent me this picture and it looks so similar to him at five or six except that Daniel had lighter eyes. I decided to include it.



           Last night around three thirty in the morning, I had a strange dream.  We were all living in the blue house we had owned when the older children were small. Daniel had never lived there. He had been born in the next much larger home we moved to after this one.   In the dream, I came home in the afternoon from work and could not find Daniel.  I quickly tried to call everyone including the older children who were in college. I was hoping that someone had picked him up to do something, and I had either not known or had forgotten.  I had trouble making these calls because I had a new phone and could not get it to respond the way I wanted, especially in view of the stress of being worried.  None of them knew why he would not be at home today. When I called his school they said that he had not reported to school that day.  This is also strange because Daniel never attended school.  He was homeschooled all of his academic life. I also rarely if ever, worked during the day. I was consumed with worry. I went outside and called for him, as if he had simply been playing outside.  I knew something was very wrong, although I still hoped there was some sensible explanation for his absence that I had not considered. In the dream, I believe he was about nine years old.  I began to dial the police when I awoke. My heart was pounding and I was in a cold sweat.  However, waking from this particular nightmare brought no particular solace. Daniel is still not here with us.   Yes, he died suddenly and unexpectedly and was not abducted never to be heard from again. But his beautiful flesh and smile are still not here. He is still absent from Earth in the manner in which we always knew him.  I lay awake until four thirty when I decided to start the day.

                    Perhaps I had this dream because there was an amber alert on my phone yesterday. Perhaps my own psyche is trying to tell me that Daniel's passing from a sudden arrhythmic death is preferable to an unexplained disappearance. Sometimes, I tell myself that in a parallel dimension, there is a Daniel who still lives with us, and is not twelve and a half as he was at his departure from Earth, but who will be twenty years old in May.  I just know that I still have empty arms.



Saturday, January 9, 2016

Visits in the New Year

             




         I haven't heard from Daniel in a dream in quite a while.  I wasn't really pining to do so, although as I have said on this blog many times, that anytime he or my Dad would like to appear in dream, I would be happy to see them.  Last night at I believe about five in the morning, I heard from Daniel, once again.    He was on a short trip with three of his friends.  Two of them were light brown haired young men, about his age, one of them with glasses.His friends briefly discussed something about Russia and it being Christmas there, and something about the oceans and dolphins. The other one was a brunette young mother, about thirty, who was a nurse who came wearing a multi-colored scrub top and pink scrub pants.   They were stopping off to visit loved ones in the holiday and New Year season.  We were all eating hors d'oeuvres mostly made of cheese. There were some I noticed that were little axes and arrowheads of cheese.

                In the dream, Daniel who will be 20 this year was tall and calm. Somehow I told him that I knew he wasn't dead. I told him that now he was here, that I would like to take him to the electrophysiology cardiologist to make sure that his heart was working as it should be.  I said something about family history. I also wanted to feed him better than lumps of cheese.  I asked him how tall he was now because he seemed to have grown a great deal. He didn't know how tall he was, and so I estimated from my height that he was between 5"10 and 6 feet tall.  "Yes, you're six feet", I said with some certainty.   Then Daniel said, "I just came to give you this" Then he hugged me. I could feel the hug as if it were real. Then, they all had to go.
               In the dream I thought that Daniel was physically present as if his passing had been some type of mistake. Upon awakening, I realized that this was simply a visitation in which he came to show me that he is alright, and to leave a hug.

               I am happy to have visits from Daniel and his friends anytime. 





Thursday, December 24, 2015

Voices Below the Wind at Christmas








  Dearest Daniel and Dad,

                     It's hard for me to believe that it's been seven years since each of you departed Earth.     So many things have happened, in the world, in the US and on the farm since that time.  Part of me believes that you know of these things, and then sometimes I am not so sure.  Part of me hopes sometimes that Heaven is so much better than Earth that you are not even concerned with some of the minutia that concerns me. Not a day passes when I don't think of each of you.    Sometimes I work in the barn with the horses or the other animals and I imagine that you both watch me with at least some level of amusement.  Daniel, I know you would love the horses and that you would marvel at how long the alpacas you knew when you were here, have lived, and how well they are doing.  Dad, I think you would be amused that the little girl who fought every one of your attempts at teaching me proper gun handling and to shoot,  grew up to be licensed to carry a firearm everywhere. I think you would be proud that I taught the same to everyone here and that I am a pro firearms and safe handling guru of sorts.

                     This week there was a woman on television named Laura Lynne Jackson who was passing messages from those who have departed from Earth to loved ones here.   It made me sad that so many others don't realize that if we stay still and listen that you do find ways to tell me things that are important. I understand those who seek psychics, although I believe that God gave most of us the ability to listen quietly to the voices below the wind.

                      Merry Christmas to you both.  Please know I love you both very much and that I try hard to do things that I believe would please you both.  Sometimes I feel you both beside me, and I am grateful for your efforts to guide me.  God bless you both.......and thank Him for me, for allowing me to know you both on this all too short trip to the cold Earth.


                          
(Picture: www.davesgarden.com  )






Saturday, December 12, 2015

Another One Has Departed Too Soon

This is Michael Namey, being remembered at his college.  His intelligent gaze even reminds me of Daniel's.


                   Michael Namey was an 18 year old Florida college student studying software engineering at the University of Central Florida.  Michael collapsed in a classroom at his college in September.   He did receive competent emergency care from a trained individual who said that there was no response.  This first responder has also penned a letter requesting more AEDs at the school. Michael was transported and then transferred to another hospital.  Following some time in ICU, he passed.   Michael was not known to have had any medical pre-existing conditions.  His girlfriend did say that he felt as if he was coming down with a cold the night before.   As is often the case with sudden arrhythmic deaths, it has taken some time for all of the autopsy data to be in.   Medical examiners believe that Michael died from a sudden arrhythmia which likely occurred in his case because his heart was silently enlarged. The normal range for someone his size/weight would have been 450 gms in the upper range of normal, and his was indeed 450 gms.   Sometimes relative cardiac enlargement is due to a virus or  there may be other reasons.   Additionally, he experienced a low blood potassium which is also associated with arrhythmias.

                I cannot help but think of our Daniel.  Daniel would be 19 now.  Michael Namey was said to have been very intelligent and a leader.  He and Daniel may have been friends had they known each other.

               We must improve our ways of detecting those at risk for sudden arrhythmic death . Such deaths are far more common than is realized.

               We send our condolences to Michael's brother Joseph and to the rest of his family.

I also send thanks to Corinne Ruiz who never misses noticing each and every sudden arrhythmic death, particularly those in children and teens.   Corinne lost her lovely daughter Olivia to a sudden arrhythmia.
 Without Corinne's continued work on improving awareness of sudden death issues, I would not know of as many as I do.


Michael Alexander Namey






Additional info on Michael Namey's passing:

 http://www.centralfloridafuture.com/story/news/2015/09/23/ucf-student-who-collapsed-hpa1-classroom-dies/72663216/


Read more about Corinne Ruiz, her daughter Olivia, and Olivia's Heart Project at:

  http://www.oliviasheartproject.org         





Friday, December 11, 2015

A Different Kind of Christmas

                  
For many, Christmas is not the season it once was.   (Rendering: www.eventbrite.com.au )


 

            Daniel departed like smoke the day after Thanksgiving at the beginning of the Christmas season, now seven years ago.   To anyone who has experienced particularly the sudden loss of a child of someone close, then you know.  We never simply "get over" life's cruelest losses.  We simply find a way to coexist and continue trudging along.

                     Particularly during the holiday season when the holiday music plays that I heard those seven years ago, I recall those first days and weeks without him.    There was no surprise greater than the sudden death of a child who was felt to be well and who had just had a clean physical.    But there were many other surprises afterward.  The first one is that a child who has died can have a perfectly normal autopsy at one of the county's best university medical centers.  Who knew that there are functional issues, particularly with the conduction system of the heart which don't necessarily show up on autopsy.  When such things happen, the detail of the passing, the position of the person, and details about the passing become important in the pathologist's best guess as to what happened.  Sometimes, learning all the things which didn't or couldn't have happened, is no help.  We wish to know what did.

                        Other surprises included the reactions of people we knew and our friends.   Our pediatrician, our allergist, and the cardiologist one of our other family members had were truly wonderful. The helicopter team from the University of Virginia who attended Daniel's code were highly professional and very kind. The sheriff's office was compassionate and professional. Their investigation was as respectful as was possible given the circumstances.   Surprises included the funeral home which handed me the bill for the funeral, two days after my child's death, just before the service. (What was wrong with afterward, or popping the bill in the mail ?)   Other surprises included some of the bizarre if not cruel things ministers of different faiths said in the intervening weeks.  Yes, it's true that a few of them were supportive.  However, am I asking too much for all of them to have some skill or training in bereavement ? After all, everyone dies, and all of us will experience the loss of someone we love in our lifetimes. Why is comforting someone in bereavement so difficult for ministers ?  Nurses navigate this, sometimes with more skill.     Most surprising were the responses of our friends and acquaintances.  Some people with whom we were acquainted, and in some cases that I did not necessary like much, were absolutely wonderful to us.  Anyone who knew the loss of a child or of a sibling went out of their way to send a kind word or to be available to us in some way in those first weeks.  Conversely, some of our closest friends at that time simply couldn't cope with the death of a child they knew, and we lost them forever.

                         We have an entirely new constellation of friends seven years later.  We do have friends we have known for thirty years who weathered Daniel's loss with us.  We also have friends we have acquired from that time or afterward. We also have a surprising number of friends who have lost children.

                          Remember as you navigate this holiday season that over time, most of us experience either an expected or a surprise passing during the Thanksgiving or Christmas season.  As you experience the joy of the season, please remember those families for whom the season is a bit harder.  For some of us, snow is seen as frozen tears, and cold days remind us of days huddled around the kitchen table eating casserole brought by a friend which tastes like our own tears, traced back to a day of loss.   Don't be afraid to include those who have endured a loss.  You can't fix it for them, but just the attempt to include them will help.

              Merry Christmas, my friends.
                        

Wednesday, December 2, 2015

The Loss of Too Many Young Children, and What We Might Do in Prevention

This post was originally posted this week on my other blog Rational Preparedness

            




            This month in the United States, there has been no shortage of egregiously bad news.   In Chicago, a young Muslim woman from Chicago who thought her parents might kill her over having a child out of wedlock, threw the newly born infant out of her eighth floor bedroom window. The infant girl died at a hospital later with a listing of injuries that would make ISIS cringe.   Another baby was found recently in the Los Angeles area, abandoned with umbilical cord attached and buried with construction debris.  Joggers luckily heard muffled cries.  This baby will survive.    I just read an article concerning an African American bail bondsman who is alleged to have beaten his seven year old son to death and then fed his remains to the pigs. Neighbors seemed to be well aware of a number of instances of severe abuse of children who were residing in the man's home.

                   There has always been wickedness upon the Earth, often bordering the homes of those who do very great good. There have been occasional babies born in toilets since there were toilets.  However, even if we adjust for the ability of the internet to bring all the egregious news of wickedness to us, there is still great evil perpetrated against babies and children, and this appears to be increasing.

                  We cannot always know of the suffering of babies and small children which occurs in our world. Sometimes, such things do occur in relative isolation. Sometimes, other individuals are complicit in such acts and cover for someone who is profoundly ill, or perhaps simply profoundly evil.  However, we must try as a culture, and as a world to do better.  When you are out and around, work on your situational awareness. Don't simply be aware of the man who is watching your purse.  Notice more than that.  Notice the sick infant in a carseat locked in the Altima in the Wal-Mart parking lot.  Maybe the misguided mother will be back in three minutes with tylenol, but maybe she won't.  Maybe that child's only chance at survival is your sitting in your car, noting the time, and calling police when no one returns.   I am a big believer in parent's rights, but there are a number of people who are pervasively neglectful and abusive to small children.  If decent people don't notice things and bring them to the attention of social services and police, then a percentage of these children will in effect, be tortured, and will die.

                 Some years ago, a woman who'd had recent surgery died in a neighborhood I lived in, and her newborn died in the crib in the same room, the result of no one knowing the child was there without being attended to, post the mom's sudden death. No one noticed they hadn't seen them !   I didn't know this woman, but I have felt badly about this ever since.    It may not be wise to intrude in the business of others, but we need to keep an eye on those with young children. Sudden deaths occur, even in young people, and a baby alone may not live more than a couple of days without care. We also know that even young children can carry the scars of a couple of days of neglect which most of us believe they would not remember.

                A child is always a blessing...............not an obligation, a millstone, a killjoy, an expense or an albatross.  Each child is blameless as he or she enters the world, and knows nothing of the circumstances which brought them here.   Each one of them is chock full of human potential and we should all conduct ourselves accordingly.   To those who are bringing a child onto the Earth that they do not wish to raise.....seek an adoption agency immediately.   Hundreds of couples who are carefully vetted would be elated to have the opportunity to love, raise, and educate that child.   Of course, there are less than perfect adoptive parents in the world, but most are incredible parents and will raise incredible children. One of my dear friends was adopted by a wonderful family.

               Especially at this time of year when we throw material goods at one another in Jesus' name, we need to recall that every birth whether legitimate, planned for, wanted, or an infant well, or ill, is proof of the opinion of God that they should overcome incredible odds to join us here on Earth.    When we can, let's start noticing the children at risk, and reporting what you saw to the correct authorities.  Lets save some young lives.





Thursday, November 26, 2015

Happy Thanksgiving 2015

Remember that whatever the situation, we need to give Thanks.   (Photo bostoneastindia.blogspot.com)





  Happy Thanksgiving to everyone this challenging holiday season.

Try to find the happiness, fellowship and joy where you can !




Monday, November 23, 2015

Seven Years

  


In this picture, Daniel was eight.  He passed four and a half years later/




 This week, on the day after Thanksgiving it will be seven years. Seven years since the day in which Daniel  happily entered the bathroom to get ready to go Christmas shopping, and collapsed.  Immediate intervention with CPR and epinephrine made no difference and despite his good color,  he was in cardiac arrest. He was pronounced dead here in our house on the farm later that morning.

     "Move on" some of our acquaintances say.  The reality is that no one who has lost a child  "gets over it".  It is not that we ruminate upon it.   It is that it is a life defining moment.  My life was sharply divided as if by machete into "With Daniel on Earth" compartments, and "After Daniel's departure from Earth"., when he died.  The world is forever changed.  I don't want to forget Daniel. I am going to mention him in conversation. This week I was recalling that he learned to read so quickly that I don't think I ever taught him.  I think being an infant and toddler while we were homeschooling his siblings and using the computer simply moved his reading and vocabulary along quickly.   I am aware that parents who have not lost a child are instantly uncomfortable when I mention my son who just happens to have passed.

       In all honesty, if I can mention him and do so with a smile following our family's loss, who are you to convey discomfort ?  You never knew him, never loved him, and don't really care.  If you don't like my mentioning Daniel, it's your problem,  not mine.

      This said, if you are the parent of a child who has passed and you are moving headlong into the holiday season, you are in my thoughts and prayers.  No, it will never be easy, but you will reach a plateau of "better" where you recall the joyous moments of your life together unimpeded by the moments which took your child from you. Some day, the loss will not obscure the joy you had by having that wonderful soul come to Earth as your child. Here's wishing that this day comes soon for you. Someday, you will be thankful rather than wholly sorrowful. I promise you this.






       Wishing all readers and their families and lovely Thanksgiving Holiday.






Thursday, November 5, 2015

The Sudden Loss of Luke Schlemm

                   





                 Daniel died suddenly in the Fall, and this week, there have been a couple of sudden deaths in boys. I wonder if the viruses which activate in the Fall, play a part in the loss of more children and teens from sudden arrhythmic death syndromes ?  I wonder if anyone has even considered studying it. Sometimes I wonder if anyone but Corinne Ruiz and I even care.

                           Yesterday, 17 year old Luke Schlemm was playing football in Sharon Springs, Arkansas. He had just finished scoring the extra point after a touchtown, when he collapsed.  An attempted stabilization was made at a local hospital and then Luke was taken to Swedish Medical Center in Englewood.   Luke was determined to be brain dead and life support was removed on Wednesday.




                           Certainly, a full autopsy will be needed to determine Luke's cause of death.  It will need to be determined as to whether an irregular heart rhythm caused a sudden death and brain damage or whether a tackle injured Luke's brain to the point of not being able to be resuscitated.  However, the circumstances do indeed point to a sudden arrhythmic death.  There are just too many of these.   Daniel parted Earth seven years ago. Have we not made any progress in the detection of kids who could be Sudden Arrhythmic Death prone.

                            Our family sends condolences to the parents, family, friends and teammates of Luke Schlemm.





 More info:

 http://denver.cbslocal.com/2015/11/04/kansas-football-players-who-collapsed-on-field/